The Birmingham Community Support Scheme for Adults with Asperger syndrome

by Andrea Macleod (1999) autism 3 177-192

“The community support scheme for adults with Asperger syndrome began in Birmingham, United Kingdom, in January 1996. ... This article reports on the progress made during the first 15 months of the scheme by examining the philosophy behind the scheme and the practicalities of providing effective community support to people with a diagnosis of Asperger syndrome. Case studies have been included to illustrate support methods and practice. Measures of progress within the first year of the scheme were evaluated through attendance rates, observation, reviews, and the comments of the clients and carers themselves.” (p. 177)

“The funding provided was sufficient to employ one practitioner, whose remit was to meet with potential clients and their families, assess general and individual support needs for people with Asperger syndrome in the area and initiate networks of support, working alongside other relevant agencies and raising awareness of the condition.” (p. 179)

“Three main areas of support needs were highlighted in every case: living skills; occupation; and social skills and social opportunities……Of the 24 families originally contacted in January 1996, eight individuals were selected to be included in the scheme for the first year.” (p. 181)

“Clients have reported feeling more grown up, having a peer group that understands them and feeling more confident/indipendent. Carers report that their sons/daughters appear to be more cooperative, sociable, relaxed and confident, and that their general quality of life seems to have improved.” (p. 189)

Note from Tony: This is the seminal study of community support services for adults and is highly recommended. Correspondence should be addressed to Andrea Macleod, West Midlands Autistic Society, 17B Fellows Lane, Harborne, Birmingham B17 9TS, United Kingdom. (p. 128).